A new perception ...

Yes... I am still struggling to accept the fact that my body is letting me down sometimes and in the last month ...I had found it a bit more of a struggle living everyday life without feeling completely drained out in the middle of the afternoons...

Further to my latest specialist appt, I had decided to go ahead with taking the first step for Sarcoidosis treatment  with some powerful drugs prescribed by my respiratory specialist. I had resisted till now but I was really finding hard and I was becoming desperate for some help !

But somehow things just happened...as if things were meant to be different...

As I started the drug treatment I had a sever allergic reaction as if my body was refusing it !  Furthermore after a 10 days break where I made some radical lifestyle changes I came back energised, refreshed and with a clear mind : no I did not want to take any drugs !

10 days break

• Some daily outdoors morning exercise for a minimum of 30 min
• Some fresh mediterranean home made cooking: fresh fruits, vegetable 
• inflammation fighting supplements and vitamins
• unconditional Love from my little nieces and nephew
• The weather was glorious too and definitely lifted my moods

Furthermore ,as if it was meant to happen, before my break I met this amazingly strong woman named Rashmi. She recommended a book : "Dying to be me" by Anita Moorjani

This book made me perceive things in a completely different way...

It talks a lot about inner guidance, about being centered, being aware. Meditation is a great way to help center oneself !

Center yourself on what gives your life joy !

So my friends, because Life is so precious. Grab every moment of joy, happiness and share it with your loved ones. You never know when it might be too late...live your life NOW !

Love Life, love to Live. 

Arriane Eva Morrin

Health Consultant, owner & entrepreneur 
Aem Health and Fitness 
Aim for better Living 
Tel: + 44 (0)797 590 4903 


www.aemhealthandfitness.ning.com

www.aemhealthfitness.com
Every one's goals and journeys are different
Be a champion in your own ways !
Be the best you can be !
Be proud of your achievements - how little they can be !

Photography by Nick Gregan 07774421878

getting over the shock...

I was quite shocked to hear that I am at stage 4 of my chronic illness.

You'll probably ask yourself -as i did - stage four out of what ? ...out of 4 ! yep ! my consultant did not even explain this to me....this is because I asked...

I did a bit of research and this is what I found:

4 Stages of Sarcoidosis

When diagnosed, one is usually told which of the 4 stages of sarcoidosis that you have. Sarcoidosis is divided into 4 stages of progression from least to most severe.

The above photos show stage I, III and IV.  You can see how the progression of the infiltration has grown from the first to the third photo.

Stage I and II Sarcoidosis

Stage I Sarcoidosis is photographed in the above left photo. It is characterized by “BHL” which stands for Bilatera Hilar Adenopathy, which means enlargement or depression of a lymph gland  (both sides) where vessels and nerves enter.  Stage II also has some other organ involvement, while stage I does not. Between 55-90% of Stage I patients go into remission and between 40-70% of stage II patients do. These stages are the earlier stages and often people are not even diagnosed at this stage, since the symptoms are relatively subtle.

Stage III Sarcoidosis

Stage III Sarcoidosis accounts for about 15% of sarcoid patients. The center photo is of a stage III patient lungs. It is characterized by much organ involvement, greater amounts of granulomas in the lungs but no lymph gland size changes. Between 10-20% of the patients at this stage go into remission

Stage IV Sarcoidosis

The photo at the right is of stage IV Sarcoidosis. This is where there are signs of fibrosis.  This means there is scar tissue forming in the sacs inside the lining of the lungs and there is other organ involvement.  5-10% of patients have this stage of sarcoidosis, and the remission rate is 0-5%.

So here I have it the shock of knowing that it is that bad! not only that but that the remission rate is only 0-5% ! 

Now I need to get over this !!!! and continue with my positivity and my mission in life : to inspire and help people live happier, healthier and better ...through healthy eating, exercise and positivity !

So my friends, because Life is so precious. Grab every moment of joy, happiness and share it with your loved ones. You never know when it might be too late...live your life NOW !

Love Life, love to Live. 

Arriane Eva Morrin

Health Consultant, owner & entrepreneur 
Aem Health and Fitness 
Aim for better Living 
Tel: + 44 (0)797 590 4903 


www.aemhealthandfitness.ni

ng.com
www.aemhealthfitness.com
Every one's goals and journeys are different
Be a champion in your own ways !
Be the best you can be !
Be proud of your achievements - how little they can be !

Photography by Nick Gregan 07774421878

Believing ...things will get bettter

My illness is progressing and making my everyday life more difficult...I am feeling very frustrated.

I realised about seven weeks ago that my chest pains were back and sharp ! It was very worrying as it could have come across as heart pains but since my heart has been cleared it can only be my lungs...but I did not make much of this at the time...also I was feeling overly exhausted....again I did not make much of this as I had busy looking after other family members fully for the last 8 weeks and little about me...to my detriment...a very big mistake as the scars left by my illness in my lungs are not reversible !

The damages done to my lungs, once scared, are not reversible... I am so upset for letting this happen and not taking better care of myself !

My body is giving me more more and more alarm signals of pain : all over pains (flu-like symptoms...this uncomfortable achy muscle / joints pains....) , imagine waking in the morning not feeling refreshed from sleep, combined with that worst day of flu where you are so exhausted you can barely raise your arm. That is how sufferers feel from the moment they open their eyes to the time they sleep every day with no relief, frequently daily over exhaustion , sharp chest pains, my right arm / shoulder is giving me more and more problem, needle pain and numbness which could also be linked to sarcoidosis affecting my nervous system (to be investigated further) ...

Enough is enough, I am taking things back under control and I am doing everything to keep things under CONTROL...I AM captain of my body after all ! 

I have started back my serious clean eating: fresh fruits, fresh vegetables, grown grains, healthy source of lean protein, supplements and I am focusing on my training, my clients and my new projects...I just need to pace myself and do this in my own time....

My life is regulated by compulsory rests / naps , to allow my body to recover and recuperate. I would not be able to function normally without my rest.

Sometimes it is very frustrating as my over exhaustion  stops me from achieving my planned daily schedule. 

But I need to be patient with myself and kind to my body ! 

This is very difficult because lately I have been feeling like a ticking time bomb and worried of how much time I had left to achieve all the wonderful things I want to achieve in life...

So I just DO...maybe a bit more slowly than I would like to ...but I DO and this is what matters as I dont want to live with regrets...

So my friends, because Life is so precious. Grab every moment of joy, happiness and share it with your loved ones. You never know when it might be too late...live your life NOW !

Love Life, love to Live. 

Arriane Eva Morrin

Health Consultant, owner & entrepreneur 
Aem Health and Fitness 
Aim for better Living 
Tel: + 44 (0)797 590 4903 




www.aemhealthandfitness.ning.com
www.aemhealthfitness.com
Every one's goals and journeys are different
Be a champion in your own ways !
Be the best you can be !
Be proud of your achievements - how little they can be !

everyone has bad days

Living with Sarcoidosis is a mix of good days and bad days...today and these last days have been bad days...unable to do much in terms of training other than training every other day at a mild intensity.

Here is a video on Sarcoidosis: http://www.thedoctorstv.com/main/home_page?init_type=Feature&init_id=3326

I am even finding walking, especially in tubes, and up the stairs very exhausting...

Don't misjudge me, I am not lazy...

Physically I feel unable, my lungs are not following me and that in itself is very frustrating!

Mentally I have so much I want to do but I just physically can't.

If I don't have a midday break of 1 or 2 hours I do not function (head and body) at my optimum for the rest of the day...and I am in a terrible mood..stay away ! it is my body saying...I need a REST !

My projects: work, training and social get delayed due to it. It's not that I don't want to it's that I physically can't.

So I focus more on clean eating and proper supplements. I have recently increased my dose of anti oxidant to fight my body inflammation. Sportron has one of the most effective and powerful blend called Viva. I would recommend it to anyone ! to strengthen your immune system and protect yourself and fight free radicals.

So I am learning to live around this but it can be very frustrating at time ...

To our Health, Wealth and Happiness

Arriane Eva Morrin

Health Consultant, owner & entrepreneur

Aem Health and Fitness

Aim for better Living

Tel: + 44 (0)797 590 4903

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